Role Description
Reporting to the Director, Community Services, the Community Lead will work with stakeholders across Central, North Simcoe and Northen Ontario to provide support services for people living with ALS and their families, helping them navigate the health care system. You will also be responsible for creating and supporting opportunities for awareness, advocacy, and fund development in your local region.
You want to work on a team that cares deeply and in an organization that cares about you. You want your efforts and your work to be meaningful and make a difference in the lives of people. This is the right opportunity for you.
Responsibilities:
Support Services
· Manage a client caseload of approximately 100-120 clients by establishing regular communication with people living with ALS and their families to provide support and help them navigate the healthcare system.
· Identify issues, manage information as well as provide non-clinical support to clients and families.
· Work with Allied Health Professionals, families, people living with ALS and the Equipment Program team to support the Equipment Program process as needed.
· Facilitate support groups, make referrals to community support services, bereavement services as needed.
· Liaise with health care and social services professionals to support client care and advocate on their behalf when required.
· Travel to visit clients in Northern areas in the province of Ontario is required.
Advocacy and Awareness
· Raise awareness about ALS disease to healthcare providers, community agencies, service clubs, students, families, and the public. Organize educational opportunities with vendors and suppliers and relevant partner agencies such as hospice.
· Develop partnerships and relationships with health care and social services organizations.
· Represent ALS Canada in local and provincial advocacy efforts, including community events, media interviews, speaking engagements and presentations.
· Attend government meetings in relation to provincial advocacy efforts.
Fund Development
· Assist with Walk to End ALS events, working with Fund Development Team to drive recruitment and training for event day Walk volunteers, manage all planning, sponsorship, relationships, promotion, and media during walk preparations.
· Work closely with the Fund Development team to identify potential donors and relationships that will enhance regional fund development activities.
· Participate in and develop fundraising community events in the region as required and attend events as an ambassador of ALS Canada.
Other
· Work independently from a home office.
· Other duties as required.
Qualifications:
· Successful completion of an accredited health discipline program and eligible for registration with professional regulatory college required (e.g., Social Work or relevant field).
· 3 - 5 years’ experience in a healthcare-related field.
· Knowledge of the Ontario health care system and resources.
· A valid driver's license and access to a vehicle.
· Strong interpersonal, communication and active listening skills.
· Demonstrated excellence in relationship building, working as part of a team, problem solving, advocacy skills and time management.
· Compassionate and professional with an ability to work well under pressure.
· Comfortable connecting with clients, teammates on a virtual platform.
· Excellent computer skills (Word, Excel, Power Point) and experience with CRM systems.
· Ability to work flexible hours, including evenings and weekends.
· Inherent demonstration of ALS Canada core values: accountability, collaboration, compassion, integrity, dynamic and respect.
· Experience with palliative care is an asset.
· Proven fundraising track record is an asset.
Apply Today!
Submit a cover letter and resume in pdf format by end of day September 22, 2024. Please be sure to indicate the job title in the email subject. Applications will be reviewed on an ongoing basis until the posting closes.
ALS Canada would like to thank all applicants for their interest; however only those selected for an interview will be contacted.
Why join ALS Canada?
A charitable organization that lives its values of accountability, collaboration, compassion, integrity, dynamic, and respect, the ALS Society of Canada is working to change what it means to live with amyotrophic lateral sclerosis, an unrelenting and currently terminal disease.
Grounded in and informed by the Canadian ALS community, we respond to the urgent unmet need for life-changing treatments by investing in high-quality research that will fuel scientific discovery and by engaging industry, supporting increased clinical capacity, and advocating for equitable, affordable, and timely access to proven therapies.
Responding to the tremendous need for current and credible ALS knowledge, awareness, and education, we empower Canadians affected by ALS to navigate the current realities of ALS, be informed consumers of ALS information, and advocate effectively for change. In Ontario, we provide direct community services to help people navigate ALS.
Founded in 1977, we are a registered charity that receives no government funding – our work is powered by generous donors who share our vision of a future without ALS.
Our world is challenging. The people we serve are dealing with a devastating illness. But in the midst of it, their resiliency and spirit are remarkable and moving. You will be touched by the community and will find a way to engage naturally and effectively.
ALS Canada is committed to accommodating the individual needs of job candidates, in accordance with the Accessibility for Ontarians with Disabilities Act (AODA), ALS Canada is committed to accommodating applicants with disabilities within our recruitment processes. Please contact the HR department at jobs@als.ca if you require an accommodation during the recruitment process.
ALS Canada is committed to being an equitable employer, we strongly encourage people from equity seeking groups to apply.
· Bilingualism is an asset.
· Previous experience working with volunteer and volunteer committees preferred.
Job Type: Full-time
Benefits:

• Dental care
• Employee assistance program
• Extended health care
• Flexible schedule
• Life insurance
• Paid time off
• RRSP match
• Vision care
• Work from home

Experience:

• Healthcare: 3 years (required)

Licence/Certification:

• Driving Licence (required)

Work Location: Remote
Application deadline: 2024-09-22